Monday, July 12, 2010

Follow Up

So this morning both Wayne and I took a very sleepy 2 year old to Primary Children's to get his EEG done. And I have to say that the two technicians were great with Fisher. He hates having anything touch his head, so getting the many little wires attached to his head was not a fun event. Once the wires were all attached they wrapped up Fisher's little, wired head with some bandage and tape which left our poor little boy looking so scared and so sad.

They wanted Fisher to sleep a little for the study. Apparently this is the best way to monitor the brain and the activity of seizures. So I took our sad little boy, held him tightly in my arms and we laid down on the little hospital bed. It took a little bit to get Fisher to calm down. We turned off all the lights and he clinged his tiny fingers tightly around his little blankie and my left hand. Wayne turned on some music to softly drown out the sound of the clock ticking and the computer buzzing next to us. I softly stroked his arm and face and after a few minutes his grip began to ease, his breathing became lighter and I could tell that he had succumb to deep slumber.

As I was laying there with Fisher in my arms, the total darkness and soft sound of music, I finally felt at peace. Like everything is going to be okay. I wanted to remember this feeling, I didn't want Fisher to let go of my hands, I wanted him to know that I am always going to be there for him. Through the good and the scary times.

So when the test was all done, and the scary part of getting all the wires off of his head, Fisher was rewarded with stickers! And he was excited because for the first time ever, Fisher said the word "stickers" excitedly when they handed them to him. And both Wayne and I celebrated with "Yays" and huge smiles.

So, we are on to the waiting game as to the results from this EEG. But, I have the most amazing pediatrician in the world. He is truly wonderful and amazing at making a worried mother feel very at ease. When we were done with the test we were told to make an appointment with a neurologist to go over our results. When I called to make this appointment we were told that we couldn't be seen till sometime in September and that they don't even have the schedule to make appointments that far in advance till next week. So I panicked and called our pediatrician, who calmly stated that he was going to call sometime Thursday to find out the results of the EEG. If it comes back abnormal, he was going to make an appointment with the neurologist for us, and he assured us that it would be before the end of the month.

So thankful for him! And so thankful for the wonderful support and thoughts sent our way! Fisher is in great hands with all of these caring people around us! We will keep you posted as to what happens next, as for now we have a very sleepy boy in our hands who is so excited to be sleeping in his own bed!


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